Originally Posted by nancyinphoenix

I have an extreme headache that has been constant since mid January. Ten years ago I was diagnosed with Tarlov cysts. I had a neuro consult at the Mayo clinic in Phoenix today. I was told that the headache is caused by low pressure related to the cerebral spinal fluid and the Tarlov cysts. I have no other symptoms typical of TC's, but this headache is a killer... I wake up with it at @ pain level 3, by 10 am it's climbing and it gets to at least an 8 or 9 by noon with no change until I go to sleep at night. My doctor is looking for a consult with a neuro surgeon. Has anyone had a similar experience?