Hi Allan ~ I'm so sorry you're dealing with all those issues. It sure has been a rough road for you.
My diagnosis too is "chronic intractable pain." I've also had surgeries, implant & removal, and now I'm just on medications as surgery is no longer an option.
Have they ever suggested the Morphine pump to you? Or is that not an option? I'm concerned about long-term use of the Hydrocodone for you, as it has the "Tylenol" in it, which is VERY damaging to the liver when used long term. You should have a liver-panel test every 6 months to be sure the liver is working well and not being affected by the "Tylenol."
I just thought perhaps the Morphine pump might be an option for you. I had the trial for it, but the docs weren't thinking cause the stimulator was too big for me and tried to working itself OUT of me -- and the pump is even bigger than the stimulator, so i don't know why the tried it on me. LOL But it worked GREAT, darn it.
Are you not able to take any opiates at all, i.e. Methadone, MS Contin, etc.? They'd sure help with the pain.
I wish I knew what to suggest. I agree with Dr. Smith in that I'm not sure you have the best doctor in the world.
I wish you the very best. God bless & take care. Hugs, Lee