Hi All,

I've had on-going issues for the last five years, to cut a long story short; I was initially mis-diagnosed & operated on for Ulnar Nerve compression, shortly afterwards I developed CRPS Type II.

After four years of tests, differing doctors & pain management clinic appointments & getting nowhere, I ditched my GP. Up until then all they did was up my OxyContin & Failed to find the route cause of my pain.

I registered at a new practice, my new GP referred me to different specialist, after couple of tests & scans my surgeon confirmed bilateral Arterial Thoracic Outlet Syndrome.

However, his investigations showed such severe compression of the R/H artery that there was a real possibility that I could occlude the artery, which would have resulted in gangrene of my right arm (the scans also showed significant stenosis to the left arm).

My surgeon had serious reservations that this was going to relieve the pain in my arm because he felt that it has become such a complex case of causalgia / CRPS that I would continue to experience pain, even after he removed the rib (he wasn't wrong).

I under-went a resection of my first rib (right) January 2012.

I wish I could report that things are better - But five months on, the pain is now worse than ever.....

Anyone else in the same situation?

Cheers

Mark