I am finding that every trip I make to any Dr just leaves me more confused. I finally got my referral to a Thoracic Surgeon, Dr. Ryan Levy with UPMC in Pittsburgh. He required a chest CT be done before our appt. Two hrs after I had the scan, they scared the heck outta me by calling and telling me our meeting was now scheduled for Hillman Cancer Center.

I went to the Cancer Center. Very emotional place to be. Not knowing what was going on, or why they had sent me there. We waited about an hr for a room, which doesn't bother me. When I was finally taken to a room, I gave the nurse my CT disc, which she lost because they kept poking their heads in asking me was I sure I didn't have it. After waiting in the room about another hr, the Dr. finally comes in.

He tells me I have a nodule in my left lung but he is not worried about that because I am a non-smoker. He did the usual poking and "does it hurt here" routine, then had me stand and tip my head completely back and turn it to each side, which just felt tight in my neck, no big deal. Then he told me to do a military stance and pull my shoulders down to the ground. My arm went tingly.

He informed me he doesn't see any cervical ribs in my CT. I said the x-ray at my ER had found them when I had my thoracic sprain and they said I had one on each side. He laughed and said he doesn't know where they got that from (totally ruins my username lol). He called me "mildly positive" for neurogenic TOS and wrote me a script for physical therapy, which I start in two days. The appointment felt lacking.

He said he is going to check my two previous EMG's, which were both negative (they tested from the elbow down both times), and if he feels they were done improperly he will have another one done and have me meet with a Neurologist. I won't hold my breath.

Has anyone else had a false positive of cervical ribs? I mean, they had to have seen something to tell me that in the first place, right? Is it possible the CT didn't get them? I'm confused. I was sooo sure I had TOS based on the info that I had cervical ribs and now he's telling me I don't have them but I do have TOS and I'm left thinking what is going on here?!?!?