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Old 06-14-2012, 02:01 AM
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alice md alice md is offline
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alice md alice md is offline
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Join Date: Sep 2009
Posts: 884
15 yr Member
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I of course can not know if you have myasthenia or not, over the internet.
But, a certain percent of patients with myasthenia have a normal EMG and no detectable antibodies.
Most modern physicians, unfortunately, trust results of tests more than they trust their clinical skills (some of them really don't have much clinical skills).
You have to keep on searching for a neurologist who treats patients and not results of tests. My current neurologist thinks that myasthenia should be diagnosed clinically and that you can have myasthenia with normal test results, but I have seen many leading experts who think that it is impossible. Changing their mind is like convincing that the earth is round to someone who knows it is flat. http://www.richardwebster.net/inourtime.html
Being angry and frustrated is not going to help you. It will only be the proof for those people of your mental instability.
The fact that you are a health care worker is not going to help you either. (it is a two-sides sword, because for those who believe that you are "faking" your illness intentionally or non-intentionally your knowledge makes you capable of " creating" very convincing symptoms).
Practically, I suggest that you try to find a support group of patients in your country, learn from them about neurologists (many times the more open-minded, caring and dedicated are not those that are famous. They are too busy taking care of their patients and not in public relations). Also, if you have physician friends you can trust, see who they recommend.
At the same time try to learn as much as you can about this illness so that you can find what works for you and makes you feel better.

Also, when a neurologist says that you have a psychiatric problem, it is like another physician saying- I am sorry, but I do not know what your illness is. Don't take it personally and don't doubt yourself and your mental health. This is how neurologists were trained to think since the time of Charcot and Freud.

My advice to you is that you use your limited time and energy to find what can help you, and not to fight windmills. I know how hard it is. I know that sometimes you just find it hard to believe that this can happen in the 21st century.







Quote:
Originally Posted by hospital_pharmacist View Post
I'D WISH TO SCREAM.
YESTERDAY I HAD AN APPOINTMENT WITH ANOTHER NEUROLOGIST BELIEVING SHE WOULD LISTENT TO ME; I JUST LOST MY TIME AND MONEY.
I TOLD HER EVERY MY SYMPTOMS AND HOW MESTINON IS HELPING ME AND THE ANSWER AFTER READING THE HOSPITAL DISCHARGE LETTER WAS:
"I SEE YOU HAVE PSYCHIATRIC PROBLEM SO I RECOMMENDED YOU TO TAKE AN APPOINTMENT WITH A PSYCHIATRIST; IT'S VERY IMPROBABLE YOU SUFFER OF MYASTHEMIA AND YOUR IMPROVEMENTS ARE ONLY SUGGESTIONS'S RESULT"
I'M VERY ANGRY WITH THAT DOCTOR.
I REPLIED HER THAT IF IT WAS TRUE WHAT SHE THOUGHT ABOUT ME, I SURELLY DIDN'T WORK AS A CLINICAL PHARMACIST BECAUSE IF YOU WORK IN THIS FIELD YOU NEED TO BE psychiatrically HEALTHY!
CRISTINA
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