Hi Imagine.

I am sorry to hear about your problem. I have myself read conflicting information on ganglionopathy and it's hard to know what is correct. Some sites say its not symmetrical and purely sensory. Others say its large & small fibre and proximal. It's hard to get clear concise information on the net.

Do you know what your neuro based the diagnosis on? Did they do any testing?
What therapies were recommended to you?

This may sound simplistic but did you also get checked for vitamin deficiencies?

It sounds as if you have a good support system at home and it is truly a blessing to have the love and security of a family.

Wishing you the best
Aussie