member
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Join Date: Apr 2007
Posts: 249
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member
Join Date: Apr 2007
Posts: 249
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It is difficult
It's nice to see so many familiar faces. I can talk to my wife and talk to my family. But, as I'm sure you guys know....it isn't the same until you can talk to people paddling in similar boats. If I had a botched neuroma surgery...and I have what is called a root nerve condition, I'm sure the original surgeon won't admit it. My first Nazi neurologist was very quick to tie in the MGUS with my neuropathy and I might as well just get used to watched my body slowly inch toward a horrible cancer. Multiple Myeloma. I wish there was a brass ring....a definable cause and effect. I have decided to corral my tests from the original neurologist....haemotoligist....gp....and attempt to work with one neurologist to continue the experiementation of "what's wrong with Jack!"
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