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Old 06-16-2012, 03:43 PM
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Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Talking Crazy Cat Lady

Hey, one thing you've surely got goin for ya is your sense of humor!
Tis very necessary in keeping the depression clouds away.

Thanks for describing the pain your back is giving you. Know what? I am in the same boat you are . I love the stimulation from the SCS, but ever since I've had it implanted, I've been dealing with those horrid back spasms. They're so bad, I can't even stand up for more than 10 minutes before they start kicking in.
I reckon I'd still keep things the way they are now if given the choice to go back to how I was before with the piercing/burning CRPS pain in both legs. I do not have any of that anymore thanks to the stim. Well, it's still 'there' of course, but not feelin it....you know what I mean.
What a trade off tho.

I don't have the stabbing/jolting pain you refer to. I'm sorry you are dealing with this!
There are reported cases of CRPS spread after getting the implant....do u spose this might be happening? The 'ice cold stabbing' sounds suspiciously like crps. I certainly hope not.
I wonder if that jolting you are feeling when you lean could be scar tissue pressing on a nerve or the electrode shocking you?
Just throwin some ideas in the air.

I know what you mean about the loose fitting clothing. Me too.
I've never been nominated for the best dressed award in fashion, that's for sure.

I take aLOT of meds also. Do any of yours help in any way with the spasms? I take baclofen, which helped at first, but lately I'm getting alot of breakthru and I'm going to see my Dr about this next week.
Benzodiazepines are known to help with spasms. I have a low dose of Klonopin on hand for emergencies and I must say it does help.

I sure wish we could get a better explanation as to why these back spasms started when we got our implants.

Rae
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"Thanks for this!" says:
Mark56 (06-16-2012), Sandy Kay (06-17-2012)