I realize this may seem trite, but the horrific turn this has taken surely seems to call out for the best of the best rather than being bounced from one to the next each with different, and apparently not relevant DX which do not lead to care. Seeing the neuromuscular rehab pain specialist sounds as though a good walk in a more positive direction for answers. My pain specialist is every bit my go to person for the issues which plague me.

Frankly, the thought which came to my head first when I read your developing nightmare was either Mayo Clinic or Johns Hopkins. Why think in terms of turning in such a direction? Simple, the clear development from a simple innoculation has been horrific results which escape answer to this point. When my cousin had four children, each of which turned out to be affected with Autistic Disorder, she being a hospital floor nurse made a bee line to Johns Hopkins. When my sister in law was first diagnosed with RSD after a purportedly "simple" [there is no simple about any surgery] knee scope surgery, and the ultimate impact was gangrenous limbs heading toward amputation, Mayo Clinic was given the big consideration.

Your husband's situation seems the more difficult of the hard cases determining what to do..... but given the direction in which the neuromuscular rehab pain specialist directs you, questions whether there is some special clinical diagnostic program anywhere which may prove to be answer driven and detail responsive may be more in the direction of patient advocacy your husband needs. In fact the specialist whom you see may well be former clinically trained in such a program..... ask. Get answers, deeper answers than "here is a script for a procedure."

Prayin,
Mark56