Quote:
Originally Posted by Rrae
Hey, one thing you've surely got goin for ya is your sense of humor!
Tis very necessary in keeping the depression clouds away. 
Thanks for describing the pain your back is giving you. Know what? I am in the same boat you are  . I love the stimulation from the SCS, but ever since I've had it implanted, I've been dealing with those horrid back spasms. They're so bad, I can't even stand up for more than 10 minutes before they start kicking in.
I reckon I'd still keep things the way they are now if given the choice to go back to how I was before with the piercing/burning CRPS pain in both legs. I do not have any of that anymore thanks to the stim. Well, it's still 'there' of course, but not feelin it....you know what I mean.
What a trade off tho. 
I don't have the stabbing/jolting pain you refer to. I'm sorry you are dealing with this!
There are reported cases of CRPS spread after getting the implant....do u spose this might be happening? The 'ice cold stabbing' sounds suspiciously like crps. I certainly hope not.
I wonder if that jolting you are feeling when you lean could be scar tissue pressing on a nerve or the electrode shocking you?
Just throwin some ideas in the air.
I know what you mean about the loose fitting clothing. Me too.
I've never been nominated for the best dressed award in fashion, that's for sure.
I take aLOT of meds also. Do any of yours help in any way with the spasms? I take baclofen, which helped at first, but lately I'm getting alot of breakthru and I'm going to see my Dr about this next week.
Benzodiazepines are known to help with spasms. I have a low dose of Klonopin on hand for emergencies and I must say it does help.
I sure wish we could get a better explanation as to why these back spasms started when we got our implants.
Rae
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Hi guys, Thankyou all for your responses. Passing Rrae a lifebelt..cant abandon the sinking ship without trying the "lifebelt" on for size..
The main pains in my back are around the surgery site ..I can feel a difference in my spine..where the scs wires are and leading to my battery.When these spasms start and the mussle contractions I feel as if I have GOT to breathe out all the toxins/meds...it sounds silly I know but thats the only way i can discribe what I feel I must do..Breathing deep..then blowing out.. I just have to stay still and wait for it to ease off. I have Oxynorm to take when Im needing instant pain relief.but Im finding I feel really Yuk ..sickly and as if Ive just had the one drink too many..even though Ive not had any alcohol since the start of the crps..after a few hrs of taking the Oxynorm (Oxycodone hydrochloride) I also have hand issues due to the long term use of crutches ..I drop things all the time.......I will never get offered a job in a China ware shop !..
Before this crps I was very active outdoors person..camping,hiking,horse riding,travel dog walking with my two tibetan Mastiffs..ohh the plans I had ...then I twisted my ankle stepping off the moving walkway in Philadelphia airport on Christmas day 09.My 2 week holiday with friends in NC ended up with me being in Philadelphia hospital for 10 days..then being told I could not fly back to UK but could do the short flight back to NC..where I stayed with my friends ...again...til 23rd Feb..10..after having a spinal nerve block .The NC Dr was the one who diagnosed my crps..I giggle about that extra Holiday sitting around with my feet up all day !No Fun.
I love Fun
. I see the Neuro modulator team in August..
Rrae..I need my sense of humour..its the only thing that keeps me Insane...
. I had lots of hobbies..I use to go to cat shows with one of my cats. Its actually through this Cat that I began to travel..(he..Alfie..likes car rides..the longer drive the better...so driving to Germany was really Great fun..I also met most of my friends via Alfie..Yep..I owe Alfie so much more than I can give him...( he wants his own car ! a Very FAST car..
)..Hmm Ive gone way off the crps and scs stuff..sorry..its Alfie,s fault..
....ok now you can stop yawning now..
..Purrs n smiles..CCL..aka Crazy Cat Lady.Lyn n Alfie