Junior Member
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Join Date: Mar 2012
Location: Chicago subburbs
Posts: 28
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Junior Member
Join Date: Mar 2012
Location: Chicago subburbs
Posts: 28
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Geting more opinions
Met with surgeon from Northwestern in Chicago...he has a great record for Minimally Invasive VATS...He will do a full trans-sternal if that is my wish. I am not 100% sold on any one way...so I am also going to Mayo in Rochester on Monday the 25th of this month to meet with them...and I am also going to meet with a doctor from UIC - he is also on the board for MGFA so...after all that I hope I can make up my mind...This is scary, but I am also hopeful that I can be somewhat symptom free someday soon...the meds (Mestinon 90 mg 3 times a day and CellCept 500 mg twice a day) are not helping much.
I will update as I move forward....Looking forward to the MG walk in Sept. Gathering my team and raising money for this disease!!!!!
Darci
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