Welcome, Virginia,
My heart goes out to you, for being so strong.
This is a great place to find. You will find lots of info and support.
There's also a caregiver forum that has a lot of supportive people there. They really do understand and support each other.
Here is the link:
http://neurotalk.psychcentral.com/forum56.html
There is lots of info here to research.
Just keep asking questions. Copy and paste works well when you're contacting different forums.
Also the "Search" buttom above is a good tool to use.
Take care...