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Old 06-19-2012, 01:15 PM
pcslife pcslife is offline
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Join Date: Sep 2009
Location: Washington D.C. metro area
Posts: 300
15 yr Member
pcslife pcslife is offline
Member
 
Join Date: Sep 2009
Location: Washington D.C. metro area
Posts: 300
15 yr Member
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Interesting article and there are only few online about this condition. One person reported how he sleep in incline position, don't bend over, symptoms always there once wake up etc., is all true for me.

I brought up this topic to 2 otolaryngologists (out of 3 since 1 specialist has his own trouble - they are humans too!). One willing to open my skull and patch it Another one did some test (looks like bogus) which didn't show anything. I have done all the ENT tests twice and hearing 3 times which all fine. 2 CT scans on my ear which is completely unnecessary and I didn't know they did when I was at hospital.

Mine is definitely not vertigo but all other disabling symptoms especially sound I think Sunlight doesn't bother me much but certain carpets, soothing light (yeah right it is not soothing at all) completely throws me off and I walk like a drunk. My head is always heavy no matter what.

imnotcrazy : I am not sure what your symptoms are. Do you have true vertigo or over all instability, sound intolerance, anxiety etc.,

Probably you know there is no sure way to tell and is an exploratory surgery. I talked one lady without head trauma who did the surgery and she said no vertigo for a year after surgery but came back. She also lost feeling one side of toungue since doc severed some nerve.

She went to this doc and said not really a nice doc.
http://www.dizzydoc.com/

Some times it heals spontaneously and some time it doesn't. If it doesn't then only way is exploratory surgery.

That is why I am using Xanax on a need only basis now - meaning when I feel really terrible and/or I have to be some where.
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Last edited by pcslife; 06-19-2012 at 01:37 PM.
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