I was planning a phone-consult with dizzy-doc, Chicago, but he doesn't do phone consults any more. Finding that article from a doc that's (kind of) nearby is great.

Since my case is still pending, I can't comment too much on details. When it's sorted, I'll post a more complete account. Short version: When I found the list of SCD symptoms on Wikipedia it was like a check-list of what I'd been going through. At first I thought it was SCD, but ruled that out, partly after an ENT reviewed my scans and partly after something else, which I'll mention later. Ruling out SCD, PLF is pretty much what's left with that cluster of symptoms.

After I found that list of symptoms it took me a few months to actually read through them all! But I'd been describing those symptoms for months before finding the list. With oscillopsia in particular, I though I was going crazy! Until I read about it, and found out that it's part of a cluster of symptoms for SCD/PLF. I reasoned to myself that I may be completely insane, but I'm not crazy enough to "perceive" or "make myself suffer" from that particular list of obscure symptoms without any background in this area of medicine; it had to be "real".

Another thing I'll mention... My oscillopsia was/is primarily (almost exclusively) on a horizontal plane (eg, vertical sign-posts look like they're vibrating). When I was describing this to a local ENT, he looked at me like I was crazy and said he'd only heard of oscillopsia on a vertical plane. Looking into that, I ruled out SCD, before he got back to me with the scan results... A canal dehiscence would only induce oscillopsia in the plane of the affected canal. For SCD, that would be oscillopsia on a vertical plane. For PLF, it could be oscillopsia on a vertical and/or horizontal plane.

So, I'm highly confident that it's a PLF case, but until I get an "expert" (or several! That would help too!) to sign off on it, my official diagnosis remains "lazy, crazy and stupid". My GP is calling it PCS, which at least qualifies me for the dole.

The formal diagnosis from the "experts" was "depression, anxiety and hyper-vigilance", but that's been revised to "nothing wrong with you, get back to work."

The "game plan" is to have one or more ENTs comment on the assessment/diagnosis of PLF, and comment on the ongoing/long-term effects of that. Then bring those reports to a neurologist, who can then say, "Yeah, that all sounds right. But even if that's not correct, this is still a case of PCS." Then bring those reports to an occupational specialist, who can say, "Yeah, that all sounds right. And getting back to full-time work is not a viable option right now." Then, with that documentation in my hand, I'll be in a position to go head-to-head with ACC and get my life back on track.... Among other things, sorting out my access to rehabilitative health care. Having a proper diagnosis will help with that!