I went for my three month follow-up with my neuro today.
She says my MRI looked good. Same number of lesions as before, not any bigger than before and none enhancing.
Then she asked how I was feeling. I told her not as good as my MRI shows. She asked how, I told her about all the visual issues and the horrible muscle spasms.
But I can't do any more muscle relaxers than what I'm on because they aggravate the periodic paralysis. So I can't even take them during the day.
She asked if I had tried tonic water. I told her I'd never heard of trying it for muscle cramps/spasms. She said to try half of an 8 or 12 oz bottle once or twice a day and put a few drops of lime juice or some cranberry juice in it. She said it might help.
So I bought some today and we will see if it works!
Other than that we are just staying the course again and I go back to see her in September. Things keep getting worse but we just don't know what else to do since every time we change something with me I tend to fall apart!