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Senior Member
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
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Hi Betsy. I'm so sorry to hear all that you are goimg through. This is a wonderful forum which has quite literally been a lifesaver for me. It helps so much to talk to others who know what it is like to live with this monster day in and day out. We all have different stories but also so many things that are the same and it feels good to know that I am not alone (though I honestly wish that no one had to live with this mess).
Currently I am doing tDCS treatments and am very happy with the treatment. Other than the success that I have seen with it, what I am most happy about with this treatment is that it is not invasive and after experiencing spread from a lumbar sympathetic block this is very important to me. It has allowed me to return to a more normal life with less pain (though it's still there all the time day in and day out...but less) and more sleep.
I'm not taking much in the way of meds after a bad reaction to some last year. So all I am using now are clonidine patches and lidoderm patches. Plus epsom salt baths, TENS, ultrasound, physical therapy, and tDCS. I need to use a walker to walk now since the RSD spread to my whole upper body (started in my left ankle) and my balance went all wonky.
How have the Ketamine Infusions been working for you? I've heard good things but the doctor in my area who offers them is out of network and they are too expensive so I never got to do them (not that I would at this point anyway after the spread...but I looked into it before). I hope you are getting some relief from the Ketamine. Best of luck and if you need anything, whether it's a advice or just to vent, please don't hesitate to post. There are so many wonderful, supportive people here.
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