Dang it, I had a nice well thought out response, and then my internet disconnected when I hit submit. Either way. Thanks for thr thoughts. I will definitely pass along the idea of Chiro/PT so at least they are doing something aside from twiddling their thumbs and watching their kid get worse while they way for these super hospitals to get them appointments.

Here is the quick story. Unfortunately I am across the country so my detail might be a little vague but this is what I have been able to put together so far. Their daughter was doing alright until they noticed she was getting incredibly blurry vision and it was worsening, and then severe headaches and pain in her left foot. (I should say it started with the pain in the left foot, then within 24 hrs the other symptoms appeared) Within a week she was no longer able to walk due to the pain. Initially they took her to a reg Dr. who referred her up to St. Louis neurology where they did a panel of blood tests, scans, etc. Initially they thought it was a brain tumor, but no tumor was located. Then they thought maybe it had something to do with her eyes ( not sure where the foot would have fit in there, but I'm not a dr, so go with it) They couldn't figure out anything there. Back up to the Neuro in STL. Nothing. Blood came back fine no issues there. Scans still clear of tumors. Then her in small town their dr. came up with the CRPS theory, and as it's progressing it seems the best fit. The pain has moved from one foot to both and seems to be progressing. All and all time elapsed is approx 6-7 months. Their doctor determined it to be stemmed from an ankles sprain and now they are getting tossed from one dr to the next not really getting anywhere. (YAY) Thanks again for responding, and thanks everyone for any help you can provide.