missmyboy,

Welcome to NeuroTalk. It breaks my heart to hear of the changes your son has gone through. My mother tells me that after my brain injury at 10, I was not her sweet little boy any more. She did not get any help from the doctors either.

You don't say where you live so researching doctors or clinics is not possible at this time.

In the mean time, you should try to find a brain injury rehabilitation hospital/clinic. They should have a better understanding of the changes your son is going through. I know that I was miserable while recovering as a 10 year old.

A specialist in Physical Medicine and Rehabilitation (physiatrist) may be able to help you or direct you.

As Jo*Mar said, an upper cervical chiropractor (www.nucca.orgmay be able to help a bit. Avoid any chiropractor who wants to do a 'twist the head and pop the neck' adjustment. It is far to aggressive.

It is not uncommon for neuros, even ped neuros to not have a good understanding of a patient like your son. Some are completely clueless.

It sounds like he had a NeuroPsychological Assessment rather than a psychiatric assessment. There is a big difference. A Ph.D. or Psy.D. for a NPA vs an M.D. An NPA can be very informative.

I wonder if his ped can prescribe an anti-convulsant/anti-epileptic to help him settle down enough to not be a danger. I was put on Dilantin (phenytoin) then switched to Phenobarbital. It sounds like his brain is misfiring in horrible ways.

A qEEG may also be helpful if you can find a good qEEG specialist.

The most important thing for you to know is that this is not your son acting out. It is his injury. It may be tough but you need to be strong for him. He is in misery in his head. I think his acting out is a sign of the frustration he is having as he tries to think.

When you look in his eyes, try to understand if he is angry or scared and confused. I could likely tell you that he is scared and confused and does not know what to do about it.

When I was 10 and suffered by mTBI, all of a sudden all of my friends left me. I started to get bullied and harassed. I was clueless as to why everything changed. It is a very lonely time.

If you can, try to sit with him and hold him quietly. He NEEDS peace and quiet. This means so sounds in the house. Limited visual stimulation, too. He should have soft comfortable clothes with no itchy tags or other annoyances. It may help to get him some ultrasoft plush toys for him to hold, even a piece of soft Polar fleece just to fiddle with.

In other words, he needs soothing stimulation with consistency throughout the day.

Keep him away from high-frustose corn syrup and artificial sweeteners. No caffeine so no Coke, Mountain Dew, Pepsi, energy drinks, Barqs Root Beer, Dr Pepper, and any of the others with caffeine. Also, no MSG or processed soy foods.

You can give him some sub-lingual B-12 a few times each day. He needs good folic acid so check this link for foods high in folic acid http://www.globalhealingcenter.com/n...ic-acid-foods/

B-12 and folic acid are neuro-protectants. He also likely needs D3, magnesium and calcium is balanced amounts. But the B-12 and folic acid are the most important.

If he were my child, I would be asking the pediatrician for some bio-identical progesterone cream therapy, too. It is a strong neuro-protectant.

The whole family will benefit from stress based nutrition so the B-12 and folic acid will help you all. Try to tell your 10 yo that her brother is sick but she is not so she needs to settle down and help him.

If you can find a Brain Injury Support Group, attend it and try to learn from other parents. In the US, the BIAA has a referral to support groups. Here is a link: https://secure.biausa.org/OnlineDire...archType1.aspx

Download and print out the TBI Survival Guide at www.tbiguide.com. It is 84 pages of excellent information.

And try to be strong. In time things will get better. Nobody can guarantee how good his recovery will be but he will improve. He needs your whole family to help him.

And keep us informed. There are plenty of supportive people here for you.

My best to you.