Thread: Well, it's not MG
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Old 06-21-2012, 06:07 AM
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
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Hiya,

I am a long time lurker on this site and saw your post this morning. I have also been investigated for MG the jury is still out ( everyone except the neurologists believe I have it).

My ears pricked up when you mentioned tachycardia please take a look at this website http://www.dinet.org/ and this website (part of the same one its a forum) http://forums.dinet.org/

It maybe possible you have postural orthostatic tacycardia syndrome. On the first link its gives you symptoms and tells you how to perform a poor mans tilt table test.

Please have a look and dont give up seraching for a diagnosis. It took me 37 years to get diagnosed with ehlers danlos syndrome a genetic condition that I had so many red flags for I was diagnosed within ten minutes of meeting the rhuematologist and 4 years to be diagnosed with POTS (postural orthostatic tachycardia syndrome).

I hope this helps

Rach
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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