I do think it is important to have the testing, if other family members have this.
The reason is that some drugs can be avoided which may trigger symptoms in asymptomatic CMTers.
Here is one example:
http://www.theannals.com/content/ear...pdf+html?rss=1
This article is about a person with CMT who did not have symptoms until taking Levaquin.
Levaquin is a fluroquinolone drug in a family commonly used for infections. Cipro, Avelox are others. These drugs have been shown to cause neuropathy and nerve damage in some people.
One of the links earlier on this thread has lists of drugs to avoid with CMT. So anyone who is at risk should be tested so they can avoid further damage, or development of symptoms.
CMT is not well understood, and patients need to learn how to protect themselves, since doctors are often clueless about it.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei
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Weezie looking at petunias 8.25.2017
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