Hi Dana,

My daughter was also diagnosed with RSD at the age of 12 years old. She is now 19 years old. I will say that she has gone through many procedures and medications. She went through the Cleveland Clinic pain management for children two times. I am going to tell you that there are several facebook pages that cater more towards families and children with RSD. Do you have a facebook page? I find a lot of help on there. I will be happy to help in any way that I can. My daughter is doing well after all of these years. I know of many families right now with children your daughters age that are on these pages. I will check back tomorrow and if you want to send me your name in a private message I will find you on facebook and send you the links. This site is also a great resource and for many years has helped me through some tough times and for that I am so grateful.

There is hope, so you need to stay on top of this and things will look worse before you see that light at the end of the tunnel. I promise it is there somewhere in the distance. So keep your chin up.

Sandy