Thread: New member - Dx'd with Myasthenia Gravis
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Old 06-24-2012, 06:42 PM
MaryTSteckart MaryTSteckart is offline
New Member
  
Join Date: Jun 2012
Posts: 3
10 yr Member
MaryTSteckart MaryTSteckart is offline
New Member
 
Join Date: Jun 2012
Posts: 3
10 yr Member
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Quote:
Originally Posted by Dee-Dee View Post
Hello,

I'm Dee. I'm 48 & newly dx'd with myasthenia gravis. I am being scheduled for a plasma exchange & thymectomy.

As anyone could guess, scared out of my wits.

I live alone with my daughter, aged 21 & our cat.

I am at my boyfriend's half the time. So I am not alone much, unless my daughter is in school or at work.

I am unable to work. Also have FM/CFS.

Very frustrated with my life, but still manage to have a few good laughs every day.

Looking for a little extra support here.

Thanks!!
Hi Dee Dee and all,
I am a new member and am in the process of having myasthenia gravis ruled out. What symptoms did you have ? Maybe we can support each other through this scary stuff. Both my blood tests were neagative, but I do have ptosis ( droopy eyes) and am exhausted quite easily. I will pray for you.
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