Thread: Well, it's not MG
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Old 06-25-2012, 06:03 AM
rach73 rach73 is offline
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
rach73 rach73 is offline
Member
 
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
15 yr Member
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Hi,

I feel your frustration I really do. It seems like you have been dealt a really rotten hand and all of us have times when we feel like enough is enough.

We arent giving up on you here, take some time to re group and re focus - I had to do the same when the drs started telling me that my symptoms including breathing problems - for which I have home oxygen for - were in my head.

Some of your symptoms do sound crazily similar to my own, my sisters and quite a few people I have met on Dinet - the forum and info site I told you about earlier. The problem is many cardiologists do not understand POTS however the site does have a list of Drs who do get it.

Please dont give up

Gentle hugs
Rach
__________________
Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.

My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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