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Old 06-25-2012, 10:36 AM
Susanne C. Susanne C. is offline
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Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
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Quote:
Originally Posted by boiler1993 View Post
hmm i dont think i have ever had increased pain when cold and when i get cold it can be like 70s outside i will wear like fleeces and still be cold sometimes. i know that u r not doctors but i appreciate your help any way. i looked at the athenas website...is there a way to narrow down which genes to look at (there are like 15)? also does insurance cover these tests typically? and how much do the tests cost? thank you
It really depends on what type of insurance you have. Ours is excellent, and would have covered all the tests, but we have switched to a high deductible HSA plan which covers everything after a certain point. Most years I would have no trouble meeting the $3000, with the gabapentin running close to $2000 alone, but it starts with the fiscal year in April, so this is only a 9 month year. Next year I will most likely have another spinal MRI and the type 2 tests.

Are you able to warm up on your own? Usually with CMT you need an external heat source- a hot shower or bath, electric blanket or heater to warm up. I admit to using my hair dryer a lot. The back of my thighs are particularly hard to warm up.
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