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Old 06-25-2012, 10:49 AM
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Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default finally referred to a MG specialist

In this "journey to a diagnosis", I am excited that my PCP has recently referred me to a neuromuscular specialist who works a lot with MG.

The guy's creds look good, and on another forum I found a post from a MG patient saying he was really good and caring, and especially talented with generalized MG.

The only other neuro I've seen (local U) said that MG was ruled out because my AChR was normal. No talk of seronegative, no talk of MuSK or tensilon.

Even better is when I called the MG specialist's clinic this morning they said "can you see him two days from now?" Yay!

Here is the MG guy's bio: http://www.noranclinic.com/providers/praful_kelkar.html
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37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
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