Have been doing a LOT of thinking today.

It´s been really really tough to cope with fluctuating symptoms, fluctuating diagnoses and a sudden remission without ever having had a positive test in the first place! Now just how ridiculous is that?!!....(I even posted on emotional support today)

Sure, some things like just yesterday, washing my hair I had to prop my elbows up on the shower window to spare the deltoids for rapid fatiguing. Yet on the same day I went out to play football with my young son. Tonight I was able to read 3 bedtime stories before sounding´dysarthic´instead of just 3 lines. For that and so many other things I am incredibly grateful...

All in all I just need to go away and live for now..... be in the present moment and make the most of it all.

I´ll be back in a couple of months asking for advice on how to prepare for my 3 hour testing of RNS, EMG & SFEMG in early September.