Dejibo, I think your diet is wonderful. Not knocking it. But it's not the Swank diet if you have the cheese in the macaroni and cheese. No cheese allowed on his diet because of high saturated fat. I found in the early days after MS diagnosis that I had to stick to the diet pretty strongly for it to work, no exceptions. And then, as he predicted, I was able to make some small exceptions later. I do eat a little cheese now, but never enough to make macaroni and cheese, which I love, and yearn for, and just cannot have. There may be a way somewhere to make Mac and Cheese with skim milk and some kind of ....chemicals?....to make it taste like the real thing. But no. No Mac and Cheese for me.

As for your tests for Porphyria, they are not often successful on the first try. Bad lab procedures at both the collecting lab and the receiving lab can screw up the tests. I recommend the following if you can get it where you are: a blood test, sent to the Mayo Clinic Porphyrin Labs in Rochester Minnesota. I was unaware that such a one was still in existence until it was given me at Mayo Scottsdale a year ago, because they wanted to check my Porph levels as a sideline to dealing with Polycythemia Vera. I thought their complete blood panel was no longer in existence since the time I first had it 16 years ago. Anyway, just suggesting, in case the issue arises again. The important thing with Porphyria is avoidance of triggers. Like the smoke we had here recently and may have again with the wildfires. How to avoid that?