I just got back from the MG specialist (a neurologist) and it was a good visit. I felt heard and understood, and like he genuinely wants to help me figure out what's causing my weakness.

After listening to my story and discussing tests that have already been performed elsewhere, the doc is thinking it's one of these two things:

MG - I have the generalized and ocular symptoms. What makes MG questionable is the fact that I have muscle stiffness & soreness immediately after using muscles (esp legs and arms). He said that muscle pain is not a feature of MG.

vs....

A myopathy - Something to do with investigating how the muscles metabolize. (I didn't understand the rest)

He ordered a Mestonin trial for me to take and see if it makes a difference. He also ordered a bunch of blood work, incluing MuSK which hasn't been done yet.

Another order was for an EMG up on the face [EEEEK], and based on the blood work results, possibly a single fiber EMG.

He's considering a muscle biopsy and is going to check out the blood work results before ordering that.

As the patient, it felt good to hear the dr say to you, "If you went from running 5k's and bodybuilding to not being able to walk 2-3 blocks, something's definitely not right."

Send any advice, hints, mestonin tips, etc my way... I'm all ears.