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Old 06-27-2012, 06:19 PM
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restorativepose restorativepose is offline
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Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
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Sorry for the play by play here.... Posting these updates because you guys 'get it' : )

I just took my very first dose of the Mestonin trial. I told the dr that I've always been highly sensitive to medication.

He prescribed me an initial dose of 60mg, and said to take a half tablet 2x/day.

It's been about 45 minutes now and I feel different... much much better. I have the muscular energy to talk with my husband after work, make dinner for the family.... before I've always been so depleted after work that all I could do was lay still and endure muscle pain from using the muscles normally throughout the day.

Perhaps I'm imagining things, but I don't think so. My husband just commented, "your eyes are open more now. And you're talking."

Maybe we're onto something here.
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37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
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"Thanks for this!" says:
pingpongman (06-27-2012), Stellatum (06-27-2012)