Quote:
Originally Posted by Sheltiemom18
en bloc's reply above is absolutely correct.
I also have Sjogren's, and it was actually the neuropathy caused by Sjogren's that was diagnosed first - burning small fiber, non-length dependent. Although greatly improved and being here for almost two years now, the neuropathy is unlikely to go away completely, and for sure the Sjogren's never will. The neuropathy improved w/o Rx meds but with the use of certain supplements (NOT herbals!).
I've some cranial neuropathy as well as autonomic nervous system problems; however, nothing to the point of incapacitation. The first eleven months were the worst. This second year has been a lot better (keeping fingers crossed).
Best,
Sheltiemom
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I have had SS for ten years and now PN for the past year,which is getting worse by the day. I cannot tolerate the traditional PN meds due to side effects, including drying eyes. I plan to see a pain management doctor to see if they can do anything for the pain that I can tolerate.
Do you have any experience in this regard or pearls of wisdom for me.
Thanks, Lynn