Biggerbetter,
Have to agree with the others. You are in the driving seat so to speak and I think it's great that your Neuro will back you up on what you write. As I was told and have told others, answer the questions based on your worst days. Don't go to the extreme but be honest and let them know just how bad an 8 hour work day or however long they are basing their questions on would be on you. I'm sure you have more bad days than good ones.

As ginnie has said, a personal letter from your Neuro in addition to him filling out the form would be great. And finz is right as well, my Neuro always says that I know my body and the effects my disease has on it better than he does so he always lets me determine when I need my next IGIV infusions. Sometimes I have to have them earlier than scheduled according to how bad my symptoms are.

I can understand your frustration with this whole disability process. This leaves us all with many negative emotions about having to prove to Social Security that we are disabled when it is so obvious to us, our loved ones and our doctors that we are. But try not to see the "good" as "bad" in your current situation. This could be just what you need to finally get your approval.

Hang in there and know that you are in my prayers

Shari