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Old 06-28-2012, 09:26 AM
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Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
restorativepose restorativepose is offline
Junior Member
restorativepose's Avatar
 
Join Date: May 2012
Location: WI
Posts: 80
10 yr Member
Default Update from me: Mestonin made a huge improvement

Hi friends,
For a few months now I've been posting back and forth between the MS board and the MG (myasthenia gravis) board. I was undiagnosed but working through all the neurology stuff.

Yesterday I saw my new neruologist, who specializes in myasthenia and also in neuromuscular disorders.

Long story short, he prescribed me a trial dose of Mestonin (MG medication), and after taking it I immediately felt much better. Amazing!

He also ordered more tests, ones that hadn't been done yet. Including a facial EMG (sounds like some awful spa service), blood work, and possibly a muscle biopsy.

So it sounds like for the time being I'll continue to hang out on the MG board, but wanted to drop a line back here to say hi.
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37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
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"Thanks for this!" says:
ANNagain (06-28-2012), Dejibo (06-28-2012), dmplaura (06-28-2012), jprinz99 (06-28-2012), Judy2 (06-28-2012), Kitty (06-28-2012), Mariel (06-28-2012), nemsmom (06-28-2012), SallyC (06-28-2012)