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Junior Member
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Join Date: May 2012
Location: WI
Posts: 80
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Junior Member
Join Date: May 2012
Location: WI
Posts: 80
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Update from me: Mestonin made a huge improvement
Hi friends,
For a few months now I've been posting back and forth between the MS board and the MG (myasthenia gravis) board. I was undiagnosed but working through all the neurology stuff.
Yesterday I saw my new neruologist, who specializes in myasthenia and also in neuromuscular disorders.
Long story short, he prescribed me a trial dose of Mestonin (MG medication), and after taking it I immediately felt much better. Amazing!
He also ordered more tests, ones that hadn't been done yet. Including a facial EMG (sounds like some awful spa service), blood work, and possibly a muscle biopsy.
So it sounds like for the time being I'll continue to hang out on the MG board, but wanted to drop a line back here to say hi.
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37yo, clinically diagnosed MG Aug 2012
Started Mestinon June 2012
*mestinon my wonder drug!*
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