Hey,

I'm looking for some advice from anyone who is shunted!! I have a 10 year old who was diagnosed with an Arachnoid cyst at the age of 2. Initially he had a CP shunt which was changed to a VP 3 years later. I'm trying to keep this short as there's just too much to go in to. He has now had over 40 ops including a cranial vault expansion (unsuccessful) and for the last 16 months the longest a shunt has worked is 4 weeks. He now has slit vents, complex hydro and a recurring cyst. For a 10 year old he is amazing but recently he has been very upset and saying he would be better dead as "he can't be fixed".....we have been home from hospital for 2 weeks and he is now showing signs of malfunction again. I desperately need to hear other peoples stories and what works doesn't work.

Debi