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Old 06-28-2012, 08:06 PM
johnt johnt is offline
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
johnt johnt is offline
Senior Member
 
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
15 yr Member
Default Online strobe light program affects my tremor

There's been many posts in the forum on the use of vibration therapies for PwP. People have posted on various non-invasive mechanisms such as physical movements, changing sounds, electrical and magnetic pulses, as well as the invasive DBS.

What these all have in common is that they add a stimulus to the CNS.

In 2010, Imark3000 and Rick wrote about the use of entrainment to reduce tremor:
http://neurotalk.psychcentral.com/sh...ht=entrainment
See also Audio-visual entrainment, at Wikipedia:
http://en.wikipedia.org/wiki/Audio%E...al_entrainment

With the desire to reduce my tremor, I thought I'd try something in this area. My background is in computing, so it's easier for me to do something computer based. On the grounds that it's easier to program, I tried a different approach: creating the stimulus using strobe lighting only.

I've written a program which generates many strobe lighting effects:
- choice of frequency, color;
- different left/right images, which can have a phase difference;
- changes of frequency and colour with time and tremor.
There are over 20 parameters that can be tweaked.

Let me give the following warning:

- flashing lights are dangerous for some people;
- the images can make your tremors worse;
- the images can make you sleepy.


The program is online at:
http://www.parkinsonsmeasurement.org/toolBox/strobe.htm

I've set the parameters to give a taster session; running for 30 sec, the frequency starts at 6 Hz and decreases with time.

My theory is that if the flashing starts close to the Parkinsonian frequency, 4-6Hz, the tremor links to the flashing and, as the flashing frequency is reduced, the tremor follows, decreasing with time.

The reality is more complicated. The strobe effect on me is:
- in the first few seconds my tremor gets worse;
- after about 30 seconds of the strobe frequency slowly decreasing the tremor's amplitude starts to decrease;
- after 3 minutes I may start to get sleepy, and the tremor gets less than it was at the start.
I've not tested the program on any other PwP, so I don't know whether the effect on other PwPs is the same.

I would like to have measured the effect, but I can't get any reliable results.

I don't ask anyone to try the program. But, I would be grateful for any comments on the approach, especially the identification of any additional dangers.

John
__________________
Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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