Originally Posted by Candice8

Hi everyone
My name is Candice I am 64 and was diagnosed with PD last November ( so shocked) and imediatley put on Akinetone for tremors in right hand, and referred to a neurologist specialising in PD, who confirmed it was by telling me my right arm did not swing.
the akenitone helped a lot, but didnīt stop them. Neurologist put me on a small dose 0.25 mg of Ropinorol 3 times a day. I didnīt notice any difference, in fact i was getting worse.

My GP then decided to put me on Sinemet I only took one tab and was rushed to hospital suffering with anaphylictic Shock a very bad alergic reaction. GP then gave me 2 weeks grace and decided to start me on Madopar, I was like a zombie and symptoms where getting worse I was falling over all the time, so what did they do but increase the Madopar x 2 .
A close friend who had been away on holiday on her return had a shock to see me so poorly. I took it upon my self to stop the Madopar and after 3 days I was back to my normal self.
GP decided i needed to see neurologist again and who said I was suffering from parkinsonīs very mild and I hadnīt got any worse than when he last saw me, even though I told him I felt a lot worse and now my legs had the tremors.
He decided he needed to double the dose of Ropinerol to 0.5mgs 3 times a day.
I have had 2 falls this week and have taken it upon myself to come off the medications by missing out the morning dose 1st day and both morning and afternoon dose second day today will only be taking the night time dose. I canīt believe how much better i feel already , so today I will reduce the evening dose and see how I am tomorrow Sunday.
I will be seeing my GP next week so will let you know How I get on.


Or I have been wrongly diagnosed as most of you seem to be doing quite well on medications.

I am only writing this on the forum as it looks like some of us either havenīt got parkinsonīs or Drīs seem to be prescribing medication to soon.

I also suffer from Spinal Stenosis and am Taking Carbomazipine, Amitryptiline, Lyrica and Arthrotec, dol-u-ron at night and can take during day if needed,neurologist wants me to stop taking Carbo and Amitryp and has put me on a 45 day reduction programe for Carbo, now 15 days into it and my Sciatica is back, but will persevere with as long as I can, He did say we can up the dose of Lyrica if needed.
I feel a lot better since I reduced Ropinirol.
I am on day 15 of the 45 day Carbo program, then i will go on the Amitryp one.
I have been on these for 20 years and have stopped drinking Alįohol which I always had a whisky at night,
I havenīt had any alcohol drinks now for 2 weeks and havenīt seen any difference, but will stay off drink for ever if I have to.
( I have found it easy to give it up) and now drink apple juice when i go out socialising)
Neurologist has said the Parkinson meds are mor important than the stenosis meds, not sure whether I agree with this yet !!.

I am still searching the internet to find any thing more about this and am shocked to find so many people with similar symptoms to mine.

I look forward to hearing from anyone on this Forum.
Regards Candice :-)