Just wanted to send good thoughts that your pain lets up and most important - that they can find you help that will not injure your bones..... is IVIG a viable alternative? Frequency for treatment with it and affect on the recipient is different for every person - I know you went to Mayo about this and at the time it wasnt suggested - any way your current docs can work with Mayo without you having to make another trip?
Take it easy for now - you were doing so wel - I'm sure more of that is right around the corner