Don't apologize for the length of your post. Everyone here 'gets it' and I thought your post was perfect!

I am really impressed with how you and your daughter are approaching this. With your observation skills and your daughter's ability to recognize and communicate the differences in how she is feeling; you will be a fantastic help to each other...AND your neuro.

Lots of folks here keep a journal...just to jot down the ups and downs, the possible triggers for them, important differences about how meds make us feel, any new symptoms, etc.

I keep one and before my neuro appointments, I just quickly review to see if there is something I should remember to mention at my appointment. It never surprises me how that journal has helped me identify the differences (improvement or otherwise) from one appointment to the next (mine are now 6 months apart).

Hope the Mestinon continues to help. Pls let us know how it's going.