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Old 07-01-2012, 08:33 PM
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Join Date: Aug 2011
Location: delaware
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10 yr Member
alt1268 alt1268 is offline
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Join Date: Aug 2011
Location: delaware
Posts: 904
10 yr Member
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I had to giggle at the first part of your message about the dr. using his mellon. I am scheduled for an upper Endoscopy on the 18th, if it shows nothing according to Dr. "H"he needs to do an emptying (which if it is rsd related will be delayed.)
I started estrogen after I started having hot flashes. They were just to much to handle. I would sit and try to read and I would just started dripping sweat. Horrible. Also, I had a hysterectomy several years ago because of endometrosis (sp) but up until April, have never experienced a daytime hotflash. Then boom 40 plus in a day.

anyway, you are right I know my body and I also know something just isn't quite right. I found 2 dr.'s who deal and are well known for dealing with rsd who both said these symptoms are not uncommon for us to have. But like you said, lets hope its something else. (its still scary to think this monster could be affecting my organs, and everything else.)
Thanks.
Anita

QUOTE=painman2009;893490]HI.. let me speak my mind on this.. 1 your dr.. the dr you just spoke about your crps/RSD dr.. you know the one that said yeah but your RSD is in your foot??? .. if so.. I suggest you say this very plain as day.. If he had any thought 1 in that melon of his he would visit the scripts you are on as for most pain meds.(especially the ones taken for long periods of time ), cause damage to the stomach and cause nausea.. and RSD can cause hat flashes . well from what I've heard from other RSDers any way. when I got nauseous I knew it was the neurontin.. don't know why I knew . I just knew, and I was taken off... guess what .. nausea ended. now with all the drugs I'm on I take vimovo.
this is like naprelan and nexium mixed..( ok not like "is") and since this no real stomach issues.. .. go over every thing with this dr. and if HE,SHE treats you like a child again . or like you are a hypochondriac. smack him and give him/her the web sites that all of us "had " to search so we could know what is going on with us . as most of us cannot rely on our Dr,s knowledge alone. (sorry that aggravates me) look what I really want you to trust is your own knowledge of your own body.. pay attn; to it as it speaks to you.. I am having issues with the itch on the RSD and I know when it started just not how yet. but I am fairly sure it isn't allergies. also now I don't want to pry or embarrass . but I know my next door neighbor has these same symptoms. and its on a schedule.. she is fairly young. and she is going though menopause . now I know you are on estrogen.. is it possible this is causing nausea . who knows but everything is worth checking out. and leaving RSD as reason for last. lord know none of us want RSD to be the cause of another thing.. I wish you well and lots of luck with finding your answers. and never let your dr,s make light of your situation.. and remember we all love you here and are here to listen and support you. godspeed.. or like Mork says... "NANOO, NANOO"[/QUOTE]
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GOD help me be faithful in the midst of my suffering. Alt1268
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