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Old 07-02-2012, 03:46 PM
lindaw623@aol.com lindaw623@aol.com is offline
New Member
 
Join Date: Jun 2012
Location: Los angeles CA
Posts: 2
10 yr Member
lindaw623@aol.com lindaw623@aol.com is offline
New Member
 
Join Date: Jun 2012
Location: Los angeles CA
Posts: 2
10 yr Member
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Quote:
Originally Posted by JoshuaY46012 View Post
Hi Guys,

This is my first post, I am new to the forum! I decided to sign up considering I've been newly diagnosed as of last week and I am so lost!

I'm in constant pain, burning, lacerating, electrical pains. I was diagnosed with Small Fiber Neuropathy and Large Fiber as well in both legs.

I was diagnosed with Small Fiber with the use of an EMG/NCV. I was told that it wasn't possible to diagnose SFN with an EMG? I had absent latency in the plantar sensory nerves in the bottom of both feet. I'm seeing a Neurosurgeon so I would assume he knows what he's doing!? Anyone else diagnosed this way? I have a Quantitative Sensory Exam as well with the pin-prick and feather too.

How do you guys deal with your pain? I'm currently taking 600 mg of Neurontin 3x a day, 50 mg of Ultram 4x a day and 0.5 mg of Ativan once daily as needed.

My doctor seems to think my cause is Idiopathic, he hasn't found any reasons as of late, he says all we can do as of now is treat the symptoms?

Thanks so much,
My name is Josh, I'm sure I'll be a continuing member here!
Hi Josh - I havbe been suffering with first small fiber neuropathy and now involvement of large fiber - I am in constant pain - feet - legs and everything from waist down. Muscle aching, nerve pain, burning. Must have had 4 EMG and autonomic testing and been on every med. We must hang in ONE DAY AT A TIME - getting thru each day as best we can and when we have to rest, we have to rest. Stay with a good neurologist and hopefully - they will find a med that works for you. Good luck. LindaW
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