Did they do the SFEMG just on your face or on your arm/leg too? You mentioned they would do it on your face, but perhaps you might have tested positive if they had done it on your arm or leg as well? I've heard some talk of doctors needing to be top of form to do the SFEMG. Mine apparently practiced on herself to help learn the nuances of the test.

Don't give up; it took 2 years, 4 neurologists, 2 rheumatologists and 3 primary physicians before they figured me out - and yes, I did want to give up sometimes because I felt unsupported and frustrated!

Prayers and best wishes to you.