Member
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Join Date: Feb 2012
Posts: 110
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Member
Join Date: Feb 2012
Posts: 110
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First of all, you are not alone. Everybody on this board suffers from many of the symptoms you do, some of us all of them, and some of us are in worse shape than you are. No matter what else happens, you can always come here and talk to us about it, and know that you will be understood. Also, you will find some very informed folk here that can tell you more about your situation than most doctors can. Or will.
It would be helpful for us to know what sort of treatment plan you have been under so far, to give you the best advice. Are you seeing a neurologist? What kind of testing has been done?
You need to understand that your symptoms and recovery are individual; no two PCS sufferers are completely alike in either their symptoms or recovery time. Recovery time is impossible to estimate. Anyone that tells you otherwise doesn't really know what they are talking about. Sure, a typical concussion should heal in a couple of weeks to maybe 1 month, but once it goes as long as yours has, the end limit is uncertain. So, concerning yourself about the length of your recovery is not going to help.
Other folks here have a lot of knowledge about what you can do to help yourself, but the most important thing is to rest a lot; your brain needs complete relaxation to heal, it will sap most of your energy in the process. Give yourself a break, don't sweat the difficulties you are experiencing, your only job right now is to rest and allow your brain to heal itself. Beyond that, it is up to the doctors to run some testing and make sure they have the right "culprit" for your symptoms; sometimes it's not even the brain itself that is the problem, but neck issues or visual issues. There's a lot to it.
It helps a lot of us to space your text out like I have been doing, btw. It is hard for some of us to read through a large block of text, whereas adding spaces after about 5 or 6 sentences helps break down the text into easier chucks. A long block of text is not as likely to be read as several shorter blocks.
In closing I'd just like to say that you should never give up hope; if you are having a lot of suicidal thoughts, you may be depressed, which is not uncommon. You should definitely talk to your dr. about those feelings, b/c depression can be treated but if left untreated it can only be detrimental to your recovery. You should relax and rest; that is your main job. If you can, keep a journal of your symptoms that you bring with you to your dr. appointment, so you won't forget anything. A lot of us have problems remembering every symptom we experience when we have to communicate with drs. , and many of us have an issue with communication in general after a mTBI; we simply end up avoiding contact where possible. That, of course, makes it difficult to talk to the drs. about our condition.
My thoughts are with you. I'm glad you found this forum, if you check in and stay up to date you will learn a lot, and if you can do some reading and research in these threads, you will find lots of information and useful links to follow for more information. Just don't over do it, rest is more important.
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