Hi Stormy and welcome to our "elite" group. I'm relatively new to crps also.

You will find lots of information and support here. A great tool to use for any topic/system/treatment you are looking for answers for is the "Advanced Search" tab above (it's under Search). When you use the advanced search feature you can scroll down and click on the rsd/crps tab to search just in this topic. Many more experienced people than you and I have offered lots of help and advice here. For example, what types of clothing helps.

The best advice I can give you is to get a "team" treating you. This would include a pain management specialist or pain anesthesiologist, a physical therapist, a psychiatrist, perhaps a neurologist. Preferably each of these should be familiar with rsd/crps.

I found my pain management specialist through this site. I am interested in getting this monster into remission. I'm not interested in masking the pain through treatments like spinal cord stimulators and I tell my "team" this. My treatments need to be focused on achieving remission.

You really need to research this site and other sites because you will be your main advocate for your care. You'll find some medical personnel who won't be up-to-date on what is helpful and what is not. That's another reason you need to read, read, read and post if you have questions. Noone will look out for your best interests more than you will.

Additionally, you'll read here that many of us have had to "dump" the medical people who aren't helping us. If someone isn't helping you or suggesting things that don't seem right, get a different specialist. It's too important that you be treated properly.

The specialist I found is someone who offers Ketamine treatments. Ketamine, from what I've read is one of the treatments that will possibly help achieve remission. The md doesn't feel like I'm quite ready for Ketamine- he wants to try a few other things first. I was relieved that he was quite comfortable with Ketamine because some of the pain management personnel that I spoke with on the phone had never heard of Ketamine so I quickly crossed them off my list. I currently travel 2.5 hrs. one way to see my specialist.

If you search the posts with the state you live in, you may find recommendations on different specialists near you.

It's hard to not get discouraged when you are in quite a bit of pain and are new to this disease. You will find lots of support, encouragement and experience here. But do see a psychiatrist. Depression is a part of this disease and there are meds that help greatly with this. My pain medicine (pm) specialist requires psychiatrist/psychologist involvement.

On the very, very bright side, because you are new to the disease, you have the best chance of remission. Get a team and fight this thing. With proper treatment and support, better days are ahead.