Originally Posted by Gabe

Hi Manatee,
I am so sorry to hear about your mother's death. It is so hard - my mom died several years ago and I still have so many questions.

Did the doctors explain any of this to your mom so that she was able to make an informed decision about refusing intubation? If you read about Myasthenia crisis they are referring to the weakness that leads to an inability to breathe which sounds like what happened to your mom. Usually people are sick and having difficulty breathing that leads up to the crisis. If they had been able to do the plasmapheresis that may have given your mom the strength to get through the crisis and receive treatment for the Myasthenia Gravis. Did she have any idea that she had it before she was hospitalized? If not, how did they determine that she had Myasthenia Gravis?

I'm sorry to be asking more questions when what you are seeking are answers. I am glad you found this place to come and to ask questions. Take care of yourself through all of this. I will be thinking of you.
Gabrielle