Thread: How to Get others to understand..
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Old 07-05-2012, 05:23 PM
SmilinEyesMs305 SmilinEyesMs305 is offline
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Join Date: Jun 2011
Posts: 242
10 yr Member
SmilinEyesMs305 SmilinEyesMs305 is offline
Member
 
Join Date: Jun 2011
Posts: 242
10 yr Member
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So sorry you are going through this at that age. I see many others your age at my various therapies and wish their parents understood better how incredibily hard daily living is with a brain injury.

I'm slightly older than you, (was in the middle of grad school/working full time, seriously relationship, time for big girl decisions about houses and cars and such), and then my world fell apart after a car accident.

I have tried throughout my recovery to get old collegues, my boyfriend (who really tries so hard to get it), my parents, my teenage brother, etc. This article, although related to lupus, helped my family finally get it! I hope it helps you.

Even though the woman has lupus, I feel like the cognitive and physical fatigue we battle daily is very similar. The point she makes in the article is applicable to us as well.

http://www.butyoudontlooksick.com/ar...e-miserandino/

my best to you and your recovery
__________________
What Happened: On 3/8/11 I was stopped waiting to merge into traffic when I was rear ended by someone doing 45 mph. I walked away from the accident, to fall into the pit of PCS 5 days later... (I have had 2 previous concussions, but neither developed into PCS.)

Symptoms 3 Years Post: Physical: migraines, infrequent vertigo, neck and back pain (from accident), tinnitus, visual field deficits in left eye, problematic light sensitivity, (including visual seizure activity), noise sensitivity, EXTREME fatigue, semi-frequent disrupted sleep cycles,
Cognitive: semi-frequent Brain fog after cognitive strain, limited bouts of impulsivity, unable to concentrate for more than short periods of time without fatigue, word finding problems, slowed processing speeds, impaired visual memory;
Emotional: easily overstimulated, depression, anxiety;
Treatment so far: Vestibular therapy; Physical Therapy; Vision Therapy; Vitamin Schedule; Limited caffeine; Medications; attempting to limit stress and overstimulation; Yoga; Cognitive Therapy
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"Thanks for this!" says:
kayley (07-05-2012)