Quote:
Originally Posted by restorativepose
Is it true that a sfemg cannot be done on the quadricep/thigh? That's what my new neuro told me last week. He wants to do a sfemg on the face, but I told him that my greatest weakness is in my legs and ability to walk.
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I had a SFEMG on my thigh and on my arms, both twice. The results were inconclusive. Then I had one on my face (by a different doctor) even though I was not having any facial or eye symptoms. The facial SFEMG got me diagnosed. That still seems weird to me (the neuro who did it said "myasthenia gravis affects every muscle in your body even if you can't feel it").
Did anyone tell you yet to make sure you're off the Mestinon for the test? Doctors will tell you to be off it for 24 hours, but there's some evidence that you should be off it longer--at least for several days. The reason you should be off it is that you might get a false negative if it's in your system. Also, don't be too well rested, and don't be cold. If the air-conditioning in the office is too high and you're chilly, ask to have the muscle warmed with a heat pack. Again, the reason is to avoid a false negative.
I hope you get answers. It's so scary and frustrating to be undiagnosed.
Abby