I think one of the reasons some of us are so sensitive to erroneous information is from meeting up with doctors who say things like "its not supposed to be painful" or "it's not supposed to get worse this quickly". You get the feeling their information is outdated, or perhaps was never very good. Even neurologists. I have small and large fiber neuropathies, pretty far gone, and my symptoms are perfectly consistent with my test results. I have pain and am losing the ability to walk. My neurologist was, however, disturbed by my symptoms and the rate of progression, so much so that she refused to see me again. Experiences like this make it very important that the information our primary care doctors find when they look up these relatively rare conditions be as accurate as possible.

Please don't take it so personally Doc! I have the greatest respect for your helpfulness, and I certainly did not intend any offense!