It can't be stressed enough that you need an expert neurologist who knows CMT. I have had the pleasure of listening and conversing with some of these experts at my support group meetings. Other neurologists and GP's do not have the slightest idea. That is why I am so adamant that the correct information (as much as it can be) be out there for people who read this and the reputable links concerning it. There are so very very many types of CMT that they have found and they are still continuing to find new types of it.

And yes, there are many many types of PN as well.

Knowledge is power but it has to be up to date as much as possible and reputable.

I also know that you are only trying to help Doc.