Originally Posted by Susanne C.

Even neurologists. I have small and large fiber neuropathies, pretty far gone, and my symptoms are perfectly consistent with my test results. I have pain and am losing the ability to walk. My neurologist was, however, disturbed by my symptoms and the rate of progression, so much so that she refused to see me again. Experiences like this make it very important that the information our primary care doctors find when they look up these relatively rare conditions be as accurate as possible.