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Member
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Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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Member
Join Date: Apr 2009
Location: Devon, United Kingdom
Posts: 531
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sorry your allergies also could be linked to these conditions as a lot of people with EDS and POTS also suffer with Mast Cell Activation Disorder - again a lot of people on the DINET forum would be able to help you. Plus many groups on facebook.
Basically MCAD patients get a lot of "allergies" and react strangely to medications and can become dangerously allergic to things that they have had no problems with previously. If you are in the states you will find it much easier to get diagnosed than the UK.
Dinet have a list of Drs you can see, Vandy has a unit for autonomic dysfunction, Mayo are doing lots of research. Dr Brad Tinkle is an EDS specialist I think and theres stuff on Youtube about him and Dr Grubb is a POTS specialist.
I think it maybe worth your while checking this out?
Rach
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Diagnosed with:
Postural Orthostatic Tachycardia Syndrome,Post Prandial Hypotension, Orthostatic Intolerance, Arrythmia, unstable blood pressure, severe autonomic nervous system dysfunction ,Ehlers Danlos Syndrome Type 3,Gastroparesis,IBS,Hidradenitis supprativa
And Myasthenia is still a possible diagnosis depending on which Dr I see.
My blog address is
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Lord, grant me the serenity to acceptThe things I cannot change,The courage to change The things I can,
And the wisdom to hideThe bodies of Doctors I shot
When they said,"You're perfectly healthy,
It's All In Your Head."
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