Liftyourhands7.
I posted on this before so I try to be short.

I had a injury with bleeding on the brain about 3 years ago.
Regarding your daughter's loss of smell and I can completely understand since I lost my sense of smell and taste which I noticed only few days later since I was so confused with what was going on. Ofcourse I was bleeding on the brain.

My sense of smell and taste was not completely lost but every smelled and tasted nasty and very depressing. I even wished it was completely gone. I lost lot of weight because I hated most of the food which didn't help my recovery. I completely understand your daughter's suffering. It can be depressing too.

After 2 months I tried non-volitional Neurofeedback and immediately after my session my sense of smell and taste improved where I was able to enjoy some food. It also helped other symptoms to come down. Dizziness, headaches, fatigue etc., But didn't last long. My Psychologist mentioned some of her patients who lost the sense got it back after the therapy. Anyways when it comes to tasting flavor, smell plays a significant role.

Then I tried HBOT for about dozen session after a year but didn't see any change immediately.

Has taken B12, B6 consistently for about 2 and a half years. Latest test showed I am very close to maximum range with B12 so my neurologist wants to stop it for a while so I don't get toxic.

After about 2 and half year my smell and taste started to improve and still improving. About 4 months ago I started a new anti-seizure medicine called Trileptal and also went for Cranio Sacral Therapy. my smell and taste improved further and now it is about 80% during the day and close to 100% during night. I have no idea why it alternates. Overall my symptoms goes down after 9 pm. No one has a clue.

As for as I know Doctor Robert Heinkin is one of the best and I live only 15 mins away. I got in touch with the doctor office who is a specialist in this area 2 years ago. He doesn't accept any Insurance except Medicare and tests and treatments are intensive. Like he put you in an fMRI and ask you to smell and look at the brain. Tons of blood tests. Probably they gave you the bloodwork needs to done which you can do it prior from your PCP to save some money. Not sure he changed any of the policies.

I heard treatment wise it can be anything from Transcranial magnetic stimulation, asthma drug seems to help if there is a problem with biochemicals.

Glad to know he is honest about the treatment. No one can guarantee. Only way to know whether it works or not is to try.

I even think if I go to him he can make it perfect but at this point I am handling other ****** symptoms like dizziness, pain etc., and paying lot of money since Insurances doesn't pay for the stuff I am trying. Also my smell and taste recovered to a good point where I can smell and enjoy food so I am not depressed anymore.

Be positive and also cautiously optimistic.

Please keep posted and let us know how everything goes.

Cheers!



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